Peta always swore she would never put her mother or father
into a home when they became incapable of looking after
themselves, or if one of her parents died and loneliness
forced a change of lifestyle.
“My own grandmother was forced into a residential care
situation and she went downhill very quickly after that,” remembers
48-year-old Peta. “I hated visiting her and I hated leaving
her there, even though I was only 13 at the time. I kept
saying to my parents, ‘There has to be a better way' but
Gran was senile and there was no better way.
“One year she completely forgot it
was Christmas. Then she left her cooker on. I just happened
to be visiting at the time, otherwise it could have be
a disaster. She clearly needed 24-hour care and my parents
weren't prepared to have her come live in the family
home.”
Peta is now in a situation where she must help determine
her own parent's fate. The director of a large nursing
hospital, both her parents have had serious health problems
of late with her mother's ability to care for herself severely
restricted following a stroke.
“We want to keep them together as long as possible,” says
Peta. “But mum is now blind in one eye and it's getting
harder and harder.”
Peta is unmarried and likely to remain so given her current
caring responsibilities. As her parents live two hours
out of Melbourne's CBD, she travels to the family home
each weekend, cleans the house, shops for the week and
prepares a few meals for her parents.
Her sister, who lives closer by, then backs up during
the week with preparation of meals and daily maintenance
support, such as driving her parents to medical appointments.
So far, so good, but not everyone has such a cooperative
sibling to share the duty of care. And not everyone wants
to spend each weekend playing nurse to an increasingly
frail parent.
Sandwich Generation
Many baby boomers find that, just as
their children need more attention to negotiate the stormy
seas of teenagehood, they are beset with a myriad of
dilemmas connected with the dependency of parents. All
this may be happening as their career hits new heights
and more is expected of them in the workplace. This ‘sandwich'
generation is well and truly boxed in around other people's
needs: (1) what their children want and need; (2) what
they want and need; and (3) what their parents want and
need.
“Women are also having babies later,” points out Relationships
Australia senior counsellor, Rosalie Pattenden. “They are
working longer, their children are staying at home longer
and their parents are living longer, with an increase in
dementia.
The key to managing these issues lies in planning .
While it is human nature to postpone hard decisions on
what to do if a parent becomes critically ill, suddenly
widowed or incapacitated in some way, it will give everyone
peace of mind to have some strategies in order.
“Talk to your parent about lifestyle changes and their
thoughts for the future,” advises Carers Australia.
“Find out their preferences and be
prepared for some parents to resist this discussion,
even when emotional or physical decline is obvious.”
For example Edward, 84, went out shopping with his wife
last November and was knocked down by a car in the parking
lot. He has not returned home since and is unlikely to
as his wife says she could not look after him. As they
have no children, the only option for Edward is to be moved
into an aged care home.
In general, most people want to stay in their homes for
as long as possible. Of all people aged 65 and over, 91
percent live in private dwellings in the community according
to the Australian Bureau of Statistics. The proportion
of people living in non-private dwellings (hostels, supported
residential services and nursing homes) rises to 26 percent
at age 80 and over.
Strategy Think Tank
In response to our ageing Australian population, governments at a national
and local level have developed a wide range of community support services
to help parents live independently. Some of these key programs are listed
below.
The first step is to determine the needs of the parent,
bearing in mind that their health condition may deteriorate
rapidly. What is the nature of the problem? Does your parent
need help with cleaning, cooking, companionship? Can your
family network help in any way to share the care around,
especially with companionship?
Organise a meeting with immediate family to discuss
strategy.
Self-Care
“If you decide to take on a caring role, it is important
to look after yourself as it is likely to affect your home
and family life,” warns Carers Australia.
“You will need to take time for yourself
so that you do not become physically or emotionally run
down.”
Don't let resentments build. Take time out for
yourself.
Moving In
If you decide to have a parent move in, discuss this thoroughly
with younger children. Ideally, this arrangement is better
if the older parent has their own space and phone connection.
Give them a role in the family, even if it is something
minor like watering the pot plants. Naturally, this will
depend on how active the elderly parent is. Make sure you
still do activities with kids, or as a family, on a regular
basis. Constantly monitor family members' feelings and
behaviours, such as a grandparent being overly critical
of a younger person's dress code. Issues and conflicts
need to be ‘flushed' out. Make everyone aware of a condition
like Alzheimer's, which can be very frightening and challenging.
Give elderly parents a role/function if they come
to live in your house.
Flexible work plan
If a parent has serious health issues, discuss a more
flexible work arrangement – even if this is a temporary
measure. Compassionate leave will vary from workplace to
workplace, but it will help to let human resources know
that you are under considerable stress and would appreciate
more leave, even if unpaid.
Reveal your situation to key people at work and
negotiate a more flexible workplan.
Carer's Survival Guide
- Take time out to care for yourself
during the day.
- If family and friends offer to help,
take them up on it. Share the tasks.
- Delegate appropriate tasks to each
member of the family, such as paying the bills, maintaining
the garden.
- Contact a Commonwealth Carer
Respite Centre (1800 059 059) to help arrange
breaks or consult an aged care professional for help
if it is getting you down.
Help to stay at home Commonwealth Carelink Services provide
free and confidential information on community aged care,
disability and other support services available locally,
interstate or anywhere within Australia. For more information,
telephone 1800 052 222.
The centres are also able to put people in touch with
Aged Care Assessment Teams who can help with a range
of services so that they can continue living in their
own home, or enter an aged care home such as a nursing
home or hostel.
http://www.commcarelink.health.gov.au
Community Aged Care Packages (CACP)
Community Aged Care Packages offer an integrated
package of services for frail aged people. If your care
needs are more complex, or you need a range of services
like help with bathing, meals, shopping and getting around,
there's a CACP which can help you.
The Extended Aged Care at Home program
assists frail aged people to remain in their homes, supported
by high level of care through an approved service provider.
There are 924 packages available for people to receive
this type of care in their homes through 56 service providers
nationally.
The Home and Community Care (HACC) Program
is a central element of the Australian Government's aged
care policy, providing community care services to frail
aged and younger people with disabilities, and their carers.
Services include nursing care, meals, domestic assistance,
transport, home modification and maintenance, counselling
and personal care.
National Respite for Carers Program
The National Respite for Carers Program (NRCP) is designed
to support and assist relatives and friends caring at home
for people who are unable to care for themselves because
of chronic illness, disability or frailty.
If you are caring for an older person or a person with
a disability, you may be eligible for financial assistance
such as the Carer Allowance and Carer
Payment that are available through Centrelink.
http://www.centrelink.gov.au
Carers Australia Commonwealth Carer Resource
Centre : 1800 242 636
http://www.carersaustralia.com.au
Aged and Community Care Information Line: 1800
500 853
Final Note
It's easy to fall into a doom and gloom mentality when
contemplating the physical and emotional requirements of
and ageing parent. The most important service you can give
an older person is your enduring optimism.
Most older people do not need help with their daily living.
Elderly parents who are encouraged to keep up all the daily
tasks, such as cooking, cleaning and shopping, will not
only remain physically fit, but will be cheerful and mentally
active.
Encourage your parent to get involved in a senior centre,
or pursue an existing or new interest, as one of the most
important measures of health in an elderly person is the
number of social contacts they have and the degree to which
they keep intellectually stimulated.
Make sure that whatever action you take, you do so out of choice and not guilt.
If you find yourself feeling resentful, look for another way. You will be no
good to anyone if you are overburdened with guilt or are highly stressed. You
cannot put your life on hold, you can only do your best.
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