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Early
on, Pete and Antonia knew there something was not right
with their son, Martin. He screamed for long periods, seemed
to be very sensitive to changes of environment and was
almost impossible to comfort. Even though Martin was their
first child, Pete and Antonia were convinced that there
was a problem, and that they were not just over-anxious,
first-time parents. When at 2 ½ years old, Martin
showed few signs of starting to talk, they consulted a
paediatrician.
After a round of tests and observations,
Martin was diagnosed with Asperger's Syndrome. Pete and
Antonia were told that this was a type of autism, although
not as severe as those children who couldn't communicate
with anyone. With early intervention, specialist programs
and lots of support at home, the paediatrician suggested
that Martin would be able to live a pretty normal life.
However, it was made very clear to Martin's parents that
this is a lifelong condition, not one that he would grow
out of, or not have to consider.
There were many hard times in those early
years. Martin had a great deal of difficulty learning to
function in a group of children. His parents worked closely
with a specialist psychologist who helped Martin to develop
social skills and taught them how to manage Martin's outbursts
and inability to cope with change. Slowly, Martin improved
until he was able to cope quite well at primary school,
where he knew all the teachers and many of the kids as
well.
But things became more difficult when Martin
started secondary school. Martin had a few odd habits:
he was obsessed with football statistics and telling jokes.
He didn't know when to stop. If any of his class mates
laughed at a joke, Martin would tell another three. If
anyone said they barracked for a particular football team,
Martin would tell them how many grand finals they had won
and in which years. As well, if anyone teased him, Martin
would get very upset and end up swearing at them. He was
becoming the odd-ball of year 7.
What is Asperger's Syndrome?
Sometimes referred to as high-functioning
autism, Asperger's Syndrome refers to a type of developmental
disorder which affects aspects of interpersonal communication.
The individual may be obsessed with certain interests,
and be unable to interpret the social and emotional behaviours
of others. Typically, those with Asperger's Syndrome have
difficulty coping with change and easily become anxious
when things are unpredictable or chaotic. Coping by the
rules becomes very important, as does having clear instructions
and expectations. Some Asperger's children are dreamy and
vague, while others are eccentric individuals who struggle
to manage the changing and messy world of social exchanges.
A range of cognitive ability is evident, so that children
with Asperger's Syndrome can have areas of high talent,
but not always.
What is it like to have Asperger's Syndrome?
Adults with Asperger's can describe the difficulties
living with this condition for which there is no cure.
A reliance on routine, learning how to manage stress and
the use of ‘formulae” for interactions with others, are
all part of daily routines. Intimate relationships are
often difficult to manage successfully, although with understanding,
adults with Asperger's Syndrome have much to offer, are
intensely loyal, and are very genuine people.
At school
Martin was being increasingly excluded by
others at school, and in fact, some of his classmates deliberately
taunted him because they thought it was really funny when
Martin lost his temper, and he fell for it every time.
Teachers were briefed on Martin's condition, and advised
how to help him when he became stressed. However, lunchtimes
were the most difficult time to manage, out of direct supervision
of the staff and where unpredictable things could happen
at any time.
Building understanding
Martin's parents had always been very open
and direct with their son, explaining to him that his brain
worked a little differently to others, although he was
like everyone else in many ways. Pete and Antonia believed
that it was best to explain the same thing to Martin's
classmates, so they could understand why Martin was different,
and what they could do to help him. Consequently, Martin's
class teacher and the school counsellor spoke to Martin's
class and the other year 7 children on a day when it was
arranged that Martin would be away from school.
They explained that Martin wanted the same
things they all wanted (including friends), that he found
it hard to read social situations and that he needed their
support in not making situations he found difficult, even
harder. The talks went well, with many children expressing
that the odd things Martin did, now made sense. They now
had a choice, to consciously made things hard for Martin,
or the reverse, to make things easier for him. Almost everyone
chose the latter.
What about adults?
Are there adults with Asperger's Syndrome?
Most definitely. Former Deputy Prime Minister, Tim Fisher,
is said to have Asperger's. A high-achieving, family man,
Tim Fisher nonetheless was likely to have appeared as “different” to
many people along the way. His acceptance of his own condition
no doubt helped others to understand and work with him
effectively. In turn, he provided an inspiring role model.
Another very famous person thought to have Asperger's Syndrome
is Albert Einstein, so it can be seen that having Asperger's
Syndrome does not rule out being a genius!
The workplace
It is easier to bridge the gap between those
with disabilities such as Apserger's Syndrome and the general
population, if they themselves are well-educated and accepting
of their disability. This acceptance initially starts with
the professionals and spreads to the families, then to
the individual and their environment. In this way, society
itself is educated and becomes progressively more tolerant.
Once we have studied together, worked together, shared
successes and failures together, we are more likely to
adopt a live-and-let-live philosophy, hopefully helping
others for whom life is not so simple.
What can employers do?
- Actively promote an inclusive workplace
and be committed to supporting those individuals who
have disabilities
- Provide a mentor who can offer coaching
and help a person with Asperger's Syndrome (or other
conditions) to resolve any difficulties
- Try to get the best match between
the person's strengths and a compatible job
- Train or brief colleagues about the
nature of Asperger's Syndrome, where the individual may
struggle and how they can help
- Recognise the importance of clear
information, structures and advance warning of changes
- Resolve any conflict immediately:
clarify misunderstanding without a confrontational or
disciplinary approach
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